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March 18

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Mixed Connective Tissue Disease and Yoga

If you’re one of my yoga students, I might have mentioned that I have arthritis or lupus.  That’s usually how I explain my health status in the interest of time.  My current diagnosis is actually Mixed Connective Tissue Disease which is a rare combination connective tissue disease.

I’m very open about the fact the I believe the reason I’m doing so well overall is my yoga practice.  MCTD and yoga is a perfect combination because you can use all the aspects of yoga to help you manage the disease.

Since this subject is so important to me I wrote this resource article on MCTD and yoga.  Be sure and visit the MCTD Foundation site for more info about MCTD.

 

What is Mixed Connective Tissue Disease?

This is a rare, complicated disease.  If you know someone who would benefit from this info, please share, as there is so little info out there on this topic.

Unless you or a loved one has received a diagnosis of Mixed Connective Tissue Disease, you’ve probably never heard of it.  The most recent studies suggest it is the least common connective tissue disease with it affecting only 3.8 per 100,000 people[i].

MCTD is a combination disease that presents in a highly individualized manner.  Fortunately, yoga’s tools of self-attunement help you discover the best disease management tools for yourself.  Once you’ve made the decision to try yoga, check in with your health care provider first so you can proceed safely with informed choices.

Yoga is a several thousand year old system for connecting your body, breath, mind, and spirit.  Here in the West, it’s often assumed to be an exercise system for young, thin, bendy people but increasingly science is showing its benefits for everyone.  As a professional yoga teacher and MCTD patient, this is a subject very near and dear to my heart.  If you haven’t considered yoga before because of your health status, I hope providing some information can spark your interest and motivate you to try it out.

The infographic with this post covers some of the most common effects of MCTD and the relevant benefits from yoga.  The most important point is, while a person can’t control their diagnosis of MCTD, they can benefit from being an empowered patient.  Yoga is a low-risk way to improve your health.

Resources for the specific features of Mixed Connective Tissue Disease:

 

  • Yoga for arthritis

 

For more resources specifically for arthritis, visit the Yoga for Arthritis website. They also have a directory of Yoga for Arthritis instructors around the country.

Yoga in Sedentary Adults with Arthritis: Effects of a Randomized Controlled Pragmatic Trial

 

  • Yoga for lupus

 

There have only been small pilot studies on the benefits or risks for people with lupus who practice yoga.

Updated review of complementary and alternative medicine treatments for systemic lupus erythematosus

  • Yoga for myositis

A very small study showed benefits for people with myositis who participated in an exercise program. There’s no published research on yoga for people with myositis.

  • Yoga for sleroderma

For more resources for yoga specifically for scleroderma, visit the Yoga for Scleroderma website.

 

How to find a yoga professional who can help you:

I wrote an article for the lupus blog, Despite Lupus, on how to choose a yoga class when you have a chronic illness which you can read about HERE.

I’m also a huge proponent of aqua yoga for people with health challenges, because you get the benefits of yoga combined with the benefits of working in the water. You can read more about aqua yoga on my aqua yoga page.

If none of the above links yielded a resource near you, also try Accessible Yoga.  Accessible yoga is a non-profit organization dedicated to bringing yoga to anyone regardless of ability. They maintain a directory of providers on their website.

Also, the International Association of Yoga Therapists certifies yoga therapists around the world. A yoga therapist has received additional training beyond what a yoga teacher receives. They work with you as an individual and provide a treatment plan based on your needs. Working with a yoga therapist might be an appropriate choice for you.

Resources to share with your health care team on Mixed Connective Tissue Disease and yoga:

Mindfulness meditation: a primer for rheumatologists

Injuries and other adverse events associated with yoga practice: A systematic review of epidemiological studies

Managing MCTD and its symptoms is a complex challenge. Yoga is one tool in your disease management toolkit that you can use for greater well being. If you’ve been inspired to try but felt overwhelmed about where to start, I hope I’ve provided you some resources to feel empowered and take the leap. Namaste!

[1] Gunnarsson et al., Mixed connective tissue disease. Best Practice & Research Clinical Rheumatology 30 (2016).

If you want help handling multiple forms of arthritis with aqua yoga, join my Aqua Yoga for Arthritis course



Living with multiple kinds of arthritis personally, aqua yoga for arthritis isn’t just a professional interest, it’s a personal journey.

Aqua yoga is what I use to

  • stay out of pain
  • keep my muscles strong despite my eroded joints
  • stay flexible with the support of the water so I don’t strain damaged connective tissues
  • keep my stress in check because you better believe Covid-19 increases stress
  • keep my outlook positive because arthritis can bring you down

And I’ve helped hundreds of other people to do the same thing locally. You may not have access to an aqua yoga teacher or you might be locked out of your classes right now. That’s what the Aqua Yoga for Arthritis Course is for.

Helping you achieve all these benefits of the practice at your pace.

To make this happen you get immediate access to:

  • 11 videos including a full 45-minute professionally produced practice class and a 30-minute discussion on how the other 7 limbs of yoga can help you
  • 30-page course workbook for the days you can’t make it to the pool
  • a guided meditation for pain relief to use anytime
  • an audio recording of your practice class to download to your phone so you practice along in the pool
  • a PDF with full directions from the class so you can laminate a waterproof poolside copy

And what makes this a course and a real learning opportunity, not just a video to gather dust, is the private session you get with me. We’ll spend half an hour customizing the class for your kind of arthritis and your needs, so you’ll always have a way to practice that’s best for you.


cover slide for the aqua yoga for arthritis course

Aqua Yoga for Lupus

Get your free copy of the sequence to laminate and use poolside by signing up

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Tags

accessibility, aqua yoga, arthritis, lupus, mixed connective tissues disease, research, rheumatoid arthritis, yoga


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